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Is now open! Click here to secure your place at the world’s largest home for data transparency events. If you are passionate about advancing in this fast-moving field, then this is the event for you! Please see below the agenda for the upcoming event. 

The 5th edition of the PHUSE Data Transparency meeting is again the only free conference in the field.

We are excited to share with you another agenda filled with high-profile speakers and presentations addressing important trends in Data Transparency. This innovative and inclusive event creates a space where you can share information and advice in an accessible way for all, ask questions and address industry challenges.

Taking place virtually across three days, the event will run in bitesize afternoon sessions from 15:00 to 17:30 (BST) each day. Attendees can expect to hear thought-provoking presentations, panel discussions and Q&A sessions around each of the day’s topics.

Topic Presenter
Tuesday 28 June
EUCTR Update from the EMANoémie Manent, EMA

EUCTR – A Cross-sectional Study to Evaluate Trial Sponsors’ Initial Experiences with the Process

Pooja Phogat, Independent                                                                                    

Navigating Transparency Requirements Under the EU CTR with AI/ML-driven Solutions                         

David Di Valentino, Privacy Analytics

Future-proofing Patient Privacy and Driving a Global Anonymization Strategy in Your Organization

Elliot Zimmerman & Ahmed Eldafrawy, Real Life Sciences                                                                    

Wednesday 29 June
Accelerated Sharing of COVID-19 Trial Data via the Vivli Global Data Sharing Platform

Rebecca Li, Vivli & Rebecca Sudlow, Roche

A Systematic Review of Data Protection Approaches Across 31 Sponsors

Aaron Mann, Clinical Research Data Sharing Alliance: CRDSA & Luk Arbuckle, Privacy Analytics 

Plain Language Summaries (PLS), Dissemination, and the Quality of Engagement

Lee Holland, Xogene & Deborah Collyar, Independent

Educate the General Population on Data Privacy and Data Sharing – A Data Transparency Working Group Update

Devaki Thavarajah, PHUSE Data Transparency Working Group Lead

Thursday 30 June
Sharing Anonymized and Functionally Effective (“SAFE”) Data

Stephen Bamford, Janssen Research & Development & Luk Arbuckle, Privacy Analytics 

Selection and Implementation of an Anonymization Solution

Alex Hughes, Roche

Use of Anonymized Data from RWE

Agnieszka Klawiter-Tsallos & Timo Miettinen, Bayer

Disclosure of Adverse Events in Anonymized Documents

Julie Holtzople & Aga Glowinska, AstraZeneca

This agenda is subject to change. 


PHUSE offer a variety of sponsorship packages which may include visibility on the event platform, a promotional video shown live during the event, or your logo displayed throughout all event communications.

The following sponsorship packages are available for the Data Transparency Summer Event (28–30 June 2022).

The prospectus contains the full package details along with the application form.

Benefits Platform Media Virtual event 
Max No' Available 1412
Logo on website

Logo in all meeting communications

Logo on platform e-banner during live event

Company e-flyer on platform during live event

Delegate list

90-second sponsor video

Logo on platform background during live event

Sponsor marketing list

*VAT will be charged at the applicable rate. View the T&Cs here.


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