Currently there is inconsistency in terminology used in the field of data sharing and disclosure. These inconsistencies exist across industry and regulatory agencies as well as within PHUSE and cause unnecessary confusion. This project aims to collect, align and standardise terminology and their definitions used in future deliverables. Previous PHUSE deliverables as well as key publications in the field, will be examined to create proposal for baseline list of terms and definitions to be used moving forward

Project Leads:

Lukasz Kniola - lukasz.kniola@biogen.com
Sarah Hewitt - shewitt@privacy-analytics.com

Key Milestones 

ObjectiveTimeline
List of sources utilisedQ3 2020 
List of terms and definitionsQ3 2020
White Paper describing the approach used to standardise the terminology and definitions Q4 2020 

Listing terms and definitions and categorised Terminologies.

Project Members 

Name RoleOrganisation 
Bhavna NandaParticipantkinapse

George Allan

ParticipantJ&J

Helle Gawrylewski

ParticipantIndustry

Jennie  McGuirk

Participant

Icon

Lora Killian

ParticipantPfizer

Raina Agarwal

ParticipantKinapse

Sowmya Gabbula

ParticipantAlnylam Pharmaceuticals
 


Project Members 

Name RoleOrganisation 
Bhavna NandaParticipantkinapse

George Allan

ParticipantJ&J

Helle Gawrylewski

ParticipantIndustry

Jennie  McGuirk

Participant

Icon

Lora Killian

ParticipantPfizer

Raina Agarwal

ParticipantKinapse

Sowmya Gabbula

ParticipantAlnylam Pharmaceuticals

 

Volunteer Today

Our project always welcomes new members to collaborate in an open, transparent and non-competitive project. If you are interested in joining please contact workinggroups@phuse.eu.