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Since the first PHUSE Data Transparency Event in 2020, PHUSE have continued to strengthen its place as the world’s largest home for data transparency events, by sharing vital knowledge of the field and creating a space where questions can be asked and challenges addressed. The PHUSE Data Transparency Summer Event 2022 took place 28-30 June and welcomed 500+ registered attendees. The event’s agenda was dedicated to EU CTR and Regulations, Patient Engagement Side , Anonymisation and Data Sharingregulations, patient engagement, anonymisation and data sharing. The presentations from the event can be found on our E-Hub. We look forward to seeing you at the Winter Event next year! | |||
| Topic | Presenter | ||
| Tuesday 28 June | |||
| EUCTR Update from the EMA | Noémie Manent, EMA | ||
EUCTR – A Cross-sectional Study to Evaluate Trial Sponsors’ Initial Experiences with the Process | Pooja Phogat, Independent | ||
| Navigating Transparency Requirements Under the EU CTR with AI/ML-driven Solutions | David Di Valentino, Privacy Analytics | ||
Future-proofing Patient Privacy and Driving a Global Anonymization Strategy in Your Organization | Elliot Zimmerman & Ahmed Eldafrawy, Real Life Sciences | ||
| Wednesday 29 June | |||
| Accelerated Sharing of COVID-19 Trial Data via the Vivli Global Data Sharing Platform | Rebecca Li, Vivli & Rebecca Sudlow, Roche | Aaron Mann, Clinical Research Data Sharing Alliance: CRDSA & Luk Arbuckle, Privacy Analytics | |
| Plain Language Summaries (PLS), Dissemination, and the Quality of Engagement | Lee Holland, Xogene & Deborah Collyar, Independent | ||
| Educate the General Population on Data Privacy and Data Sharing – A Data Transparency Working Group Update | Devaki Thavarajah, PHUSE Data Transparency Working Group Lead | ||
| Thursday 30 June | Sharing Anonymized and Functionally Effective (“SAFE”) Data | Stephen Bamford, Janssen Research & Development &Luk Arbuckle, Privacy Analytics||
| Selection and Implementation of an Anonymization Solution | Alex Hughes, Roche | ||
| Use of Anonymized Data from RWE | Agnieszka Klawiter-Tsallos & Timo Miettinen, Bayer | ||
| Disclosure of Adverse Events in Anonymized Documents | Julie Holtzople & Aga Glowinska, AstraZeneca | ||
| Sponsorship | |||
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PHUSE offer a variety of sponsorship packages which may include visibility on the event platform, a promotional video shown live during the event, or your logo displayed throughout all event communications. The following sponsorship packages are available for the Data Transparency Summer Event (28–30 June 2022). The prospectus contains the full package details along with the application form. | |||
| Benefits | Platform | Media | Virtual event |
| Price* | £12,500 | £6,000 | £1,000 |
| Max No' Available | 1 | 4 | 12 |
| Logo on website |
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| Logo in all meeting communications |
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| Logo on platform e-banner during live event |
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| Company e-flyer on platform during live event |
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| Delegate list |
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| 90-second sponsor video |
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| Logo on platform background during live event |
| Sponsor marketing list |
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If you are interested in sponsoring a future Data Transparency event, please contact events@phuse.global. |
Sponsors | ||
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