Currently there is inconsistency in terminology used in the field of data sharing and disclosure. These inconsistencies exist across industry and regulatory agencies as well as within PHUSE and cause unnecessary confusion. This project aims to collect, align and standardise terminology and their definitions used in future deliverables. Previous PHUSE deliverables as well as key publications in the field, will be examined to create proposal for baseline list of terms and definitions to be used moving forward
Project Leads:
Lukasz Kniola - lukasz.kniola@biogen.com
Sarah Hewitt - shewitt@privacy-analytics.com
Key Milestones
Project Members
| Name | Role | Organisation |
|---|---|---|
| Bhavna Nanda | Participant | kinapse |
George Allan | Participant | J&J |
Helle Gawrylewski | Participant | Industry |
Jennie McGuirk | Participant | Icon |
Lora Killian | Participant | Pfizer |
Raina Agarwal | Participant | Kinapse |
Sowmya Gabbula | Participant | Alnylam Pharmaceuticals |
Volunteer Today
Our project always welcomes new members to collaborate in an open, transparent and non-competitive project. If you are interested in joining please contact workinggroups@phuse.eu.