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Project Scope

Currently there is inconsistency in terminology used in the field of data sharing and disclosure. These inconsistencies exist across industry and regulatory agencies as well as within PHUSE and cause unnecessary confusion. This project aims to collect, align and standardise terminology and their definitions used in future deliverables. Previous PHUSE deliverables as well as key publications in the field, will be examined to create proposal for baseline list of terms and definitions to be used moving forward.

Project Leads

Email

Lukasz Kniola
lukasz.kniola@biogen.com
Sarah Hewitt
shewitt@privacy-analytics.com


Key Milestones 

ObjectiveTimeline
List of sources utilisedQ3 2020 
List of terms and definitionsQ3 2020
White Paper describing the approach used to standardise the terminology and definitions Q4 2020 


CURRENT STATUS

Listing terms and definitions and categorised Terminologies.

Project Members 

Organisation 
Bhavna Nandakinapse

George Allan

J&J

Helle Gawrylewski

Industry

Jennie  McGuirk

Icon

Lora Killian

Pfizer

Raina Agarwal

Kinapse

Sowmya Gabbula

Alnylam Pharmaceuticals
 
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