| Data Privacy and Data Sharing in Clinical Trials |
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The Data Transparency Working Group present their first PHUSE Community Forum. The Educate the General Population project have recently published two out of a series of six videos on Data Sharing in Clinical Trials and are calling for your feedback! Join this Community Forum for the chance to view the videos and share your thoughts and ideas. This Community Forum event will take place over Zoom on 21 February 2023, 15:00–16.30(GMT)/10:00–11:30(EST). Register here! |
| Presenter | Bio |
|---|---|
| Devaki Thavarajah, Instem Devaki partners with pharmaceutical clients, members of the research and healthcare community globally to help meet their clinical trial transparency and disclosure requirements. |
| Deborah Collyar Deborah Collyar has been a leader in patient engagement and advocacy since her first cancer diagnosis. Her business leadership, IT, and communication skills bridge gaps between scientists, medical providers, and patients. Deborah founded the Patient Advocates in Research (PAIR) international communication network in 1996, "where research meets reality," and consults with health and medical research communities. Deborah infuses patient representatives into projects and gathers relevant input from patients. Her work encompasses many diseases, programs and policies at grassroots, national and international levels with companies, academia, and governments. Key insights are delivered throughout development, clinical trials, results reporting, data-sharing, standards, transparency, and into practice. |
| Resources |
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Video 0: Introduction https://youtu.be/UKZmYLygP-0 Video 1: Importance of Clinical Trials https://youtu.be/LhSF7DZmwkc |