Data Transparency Events

PHUSE would like to thank all presenters that took part in the Data Transparency Summer Event 2023. If you did not get the chance to attend the event, click the titles below to view the presentations. All recordings are available on the Engagement Hub.

Save the date for our next Data Transparency Winter Event taking place 6-8 February 2024.

Presentations & Recordings
The recordings from all three days are available on the Engagement Hub.
Date	Presentation	Author (s)
Day 1: 20 June	What Automations Could Be Introduced for CTIS Redactions?	Parveen Kumar, GENINVO
	Data Transparency and Anonymisation: An Exploration of Industry Practices	Nastazja Laskowski, Roche
	TransCelerate’s Privacy Methodology for Cross-industry Clinical Data Reuse	Boris Grimm, Boehringer Ingelheim & Jeppe Manuel, Novo Nordisk
	Standard Anonymisation: An International Framework	Luk Arbuckle, Privacy Analytics
Day 2: 21 June	Regulation and its Effect on Patient Data and the Progress in Science – An Ethical Approach	Peter Kapitein, Inspire2Live
	EU Protocol Synopsis – Current Trends and Best Practices	Vidhi Vashisht, Krystelis
	Data Transparency – Updates from EMA Policy 0070	Karen Quigley, EMA
	PHUSE/Xogene Collaboration Site – Demo	Ankur Patel & Sanjay Bagani, Xogene
Day 3: 22 June	Challenges and Best Practices in Protecting Commercially Confidential Information (CCI) in Clinical Documents for Public Disclosure	Niamh McGuinness, Privacy Analytics
	Challenges in Masking Patient Privacy in Rare Disease	Sheetal Bagul, GENINVO
	Sharing Data Internally – Secondary Data Use within Organisations	Lukasz Kniola, Biogen

Sponsorship

Prospectus and Application Form

PHUSE offer a variety of sponsorship packages which may include visibility on the event platform, a promotional video shown live during the event, or your logo displayed throughout all event communications.

If you would like to sponsor one of the Data Transparency events in 2024, please contact events@phuse.global with details of the package(s) you’re interested in taking out. Sponsorship package details will be available soon.

For other information on how to get involved, email workinggroups@phuse.global.

Past Events
Want to catch up on past events? The content is available on demand from the PHUSE Engagement Hub. Alternatively, you can read the high-level summaries for each event on the Working Groups Events Archive page.

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Data Transparency Events